Dignified Palliative Long-Term Care : An Interpretive Systemic Framework of End-of-Life Integrated Care Pathway for Terminally Ill Chinese Older Adults

Andy Hau Yan HO, James K. H. LUK, Felix H. W. CHAN, Wing Chun NG, Catherine K. K. KWOK, Joseph H. L. YUEN, Michelle Y. J. TAM, Wing W. S. KAN, Cecilia L. W. CHAN

Research output: Journal PublicationsJournal Article (refereed)peer-review

12 Citations (Scopus)

Abstract

Purpose: To critically examine the system dynamics necessary for successfully implementing a novel end-of-life integrated care pathway (EoL-ICP) program in promoting dignity and quality of life among terminally-ill Chinese nursing home residents.

Methods: Thirty stakeholders were recruited to participate in 4 interpretive-systemic focus groups.

Results: Framework analysis revealed 10 themes, organized into 3 categories, namely, (1) Regulatory Empowerment (interdisciplinary teamwork, resource allocation, culture building, collaborative policy making), (2) Family-Centered Care (continuity of care, family care conference, partnership in care), and (3) Collective Compassion (devotion in care, empathic understanding, compassionate actions).

Conclusions: These findings highlight the importance of organizational structure, social discourse, and shared meaning in the provision of EoL-ICP in Chinese societies, underscoring the significant triangulation between political, cultural, and spiritual contexts embodied in the experience of dignity.

Keywords: death and dying; dignity; long-term care; qualitative methods; transitional models.
Original languageEnglish
Pages (from-to)439-447
JournalAmerican Journal of Hospice and Palliative Medicine
Volume33
Issue number5
Early online date14 Jan 2015
DOIs
Publication statusPublished - 1 Jun 2016
Externally publishedYes

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