Evaluating the use of patient-reported non-routine events in pediatric and radiation oncology: A pilot study

Kathryn G. TIPPEY, Jason M. SLAGLE, Ryan K. CLEARY, Debra L. FRIEDMAN, Lisa A. KACHNIC, Matthew S. SHOTWELL, Jie XU, Sarah MOROZ, Shilo ANDERS, Matthew B. WRINGER

Research output: Journal PublicationsJournal Article (refereed)peer-review

1 Citation (Scopus)

Abstract

This prospective pilot study evaluated (1) the potential for collecting structured longitudinal data on patient- reported non-routine events (PNREs) (i.e., events that deviate from expected or optimal care) during pediatric and adult radiation cancer therapies and (2) the potential relationship between PNREs, Patient-Reported Outcomes Measures (PROMs), and unplanned treatment events (UTEs). Along with PNREs, data were collected on patient's background, distress, quality of life, hospital system care experience rating, and treatment intensity, during a 3-month period; UTEs were retrospectively captured through review of patients' records. Initial results suggest a relationship exists between both PNREs and safety-relevant PNREs with patient distress, quality of life, and care experience ratings. UTEs occurred more often in pediatric patients and were primarily related to patients' underlying disease. This systems-safety approach to identifying at- risk points in treatment pathways has the potential to provide actionable information for the mitigation of shortcomings in cancer therapy.
Original languageEnglish
Pages (from-to)538-542
Number of pages5
JournalProceedings of the Human Factors and Ergonomics Society Annual Meeting
Volume62
Issue number1
Early online date27 Sept 2018
DOIs
Publication statusPublished - Sept 2018
Externally publishedYes

Bibliographical note

Publisher Copyright:
© 2018 Human Factors an Ergonomics Society Inc.. All rights reserved.

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