The costs of dementia in England

Raphael WITTENBERG*, Martin KNAPP, Bo HU, Adelina COMAS-HERRERA, Derek KING, Amritpal REHILL, Cheng SHI, Sube BANERJEE, Anita PATEL, Carol JAGGER, Andrew KINGSTON

*Corresponding author for this work

Research output: Journal PublicationsJournal Article (refereed)peer-review

42 Citations (Scopus)

Abstract

Objectives

This study measures the average per person and annual total costs of dementia in England in 2015.

Methods/Design

Up-to-date data for England were drawn from multiple sources to identify prevalence of dementia by severity, patterns of health and social care service utilisation and their unit costs, levels of unpaid care and its economic impacts, and other costs of dementia. These data were used in a refined macrosimulation model to estimate annual per-person and aggregate costs of dementia.

Results

There are around 690 000 people with dementia in England, of whom 565 000 receive unpaid care or community care or live in a care home. Total annual cost of dementia in England is estimated to be £24.2 billion in 2015, of which 42% (£10.1 billion) is attributable to unpaid care. Social care costs (£10.2 billion) are three times larger than health care costs (£3.8 billion). £6.2 billion of the total social care costs are met by users themselves and their families, with £4.0 billion (39.4%) funded by government. Total annual costs of mild, moderate, and severe dementia are £3.2 billion, £6.9 billion, and £14.1 billion, respectively. Average costs of mild, moderate, and severe dementia are £24 400, £27 450, and £46 050, respectively, per person per year.

Conclusions

Dementia has huge economic impacts on people living with the illness, their carers, and society as a whole. Better support for people with dementia and their carers, as well as fair and efficient financing of social care services, are essential to address the current and future challenges of dementia.

Original languageEnglish
Pages (from-to)1095-1103
Number of pages9
JournalInternational Journal of Geriatric Psychiatry
Volume34
Issue number7
Early online date5 Apr 2019
DOIs
Publication statusPublished - Jul 2019
Externally publishedYes

Bibliographical note

The full MODEM project team is Bayo Adelaja, Mauricio Avendano, Sally-Marie Bamford, Sube Banerjee, Sharne Berwald, Ann Bowling, Clare Burgon, Elizabeth Bustard, Adelina Comas-Herrera, Margaret Dangoor, Josie Dixon, Nicolas Farina, Yvonne Feeney, Laura Gallaher, Sally Greengross, Emily Grundy, Ruth Habibi, Bo Hu, Carol Jagger, Martin Knapp, Derek King, Andrew Kingston, Daniel Lombard, Klara Lorenz, David McDaid, A-La Park, Jitka Pikhartova, Amritpal Rehill, and Raphael Wittenberg.

This study was funded by the UK Economic and Social Research Council (ESRC) and the National Institute for Health Research (NIHR). Beyond approval for our original proposal, neither funding body had any influence over study design; collection, analysis, or interpretation of data; or writing of this manuscript. Cheng Shi's contribution to the study was separately funded by the Chinese Scholarship Council (CSC, reference no. 201706360233)

Keywords

  • cost of illness
  • costs
  • dementia
  • England
  • health care
  • social care
  • unpaid care

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